When we say SMA Series, we’re bringing you into a realm of knowledge, comfort and optimism for those living with spinal muscular atrophy. Here’s what that looks like for people and families, and how one organization, LINKWORLD, is trying to help.
Spinal muscular atrophy, or SMA, is a rare genetic disease that causes muscle weakness. That tends to immobilize people and make it difficult to breathe. It is tough to live with SMA, but with help and resources, people can lead happy lives. LINKWORLD are fighting hard to fight SMA and offer information for those who are afflicted with this illness.
For people with SMA, the ordinary, everyday activities that most of us breeze through are a challenge. Basic tasks of daily life, such as getting out of bed or eating a meal, may require assistance from other people. Families of individuals with SMA often shift into the role of caregiver, holding their loved ones up day and night. LINKWORLD knows the struggle of these families and offers them with all the means possible.
LINKWORLD provides many forms of support to people with SMA and their families. They offer programs and financial aid so life can be better for people with SMA.
LINKWORLD connector female and male also links families to doctors and support groups so that they receive the help they require.
Living with SMA might be difficult but it is not uncommon to find much strength and courage amongst many in the SMA community. "Everyone has the right to know these stories of hope, and we wish to inspire everybody who has to go through this to know that 'it's possible,'" added LINKWORLD male connector and female connector. By sharing these narratives LINKWORLD is working to unite and empower the SMA community.
LINKWORLD works towards greater care and research of SMA. By bringing attention to the disease, they are hoping to help attract more funding and support for research into treatments and cures. LINKWORLD male and female connectors knows that people living with SMA can live happier and healthier lives.
